多发性硬化症对育儿的影响:混合方法系统审查
Eva Scallan Dowd1, Fiadhnait O'Keeffe1
1School of Applied Psychology, University College Cork, Cork, Ireland.
Disability and rehabilitation
|November 1, 2025
概括
多发性硬化症 (MS) 显著影响育儿,在日常生活中带来挑战. 诸如心理健康服务和社交网络之类的支持可以帮助患有多发性硬化症的父母管理他们的责任.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 家庭研究 家庭研究
背景情况:
- 多发性硬化症 (MS) 给日常生活带来了重大挑战.
- 对于患有多发性硬化症的人来说,家长的责任可能特别苛刻.
研究的目的:
- 综合有关MS如何影响育儿能力和经验的证据.
- 了解多发性硬化症对父母日常生活和家庭生活的影响.
主要方法:
- 按照PRISMA和JBI指南进行系统审查.
- 在多个数据库中进行搜索 (PubMed,Scopus,CINAHL,PsychINFO,学术搜索完整).
- 通过使用SPIDER框架标准对1792个结果进行选.
主要成果:
- 包括22项研究,涉及2466名患有多发性硬化症的父母.
- 多发性硬化主要对育儿产生负面影响.
- 关键主题:风险/保护因素,对育儿活动的影响,情感损失和应对策略.
结论:
- 患有多发性硬化症的父母每天都面临疲劳,移动性和认知问题的挑战.
- 确定的支持包括心理健康服务,社交网络和沟通援助.
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