关于参与决策的父母和青少年的观点:在状细胞和糖尿病诊所的定性比较
Alfonso L Floyd1, Alexis A Thompson2, Alexander Fiks2
1Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Patient education and counseling
|November 1, 2025
概括
青少年参与状细胞疾病 (SCD) 和1型糖尿病 (T1D) 的医疗决策受到临床医生和家长行为的影响. 信任关系和量身定制的方法增强了青少年的决策参与 (DMI).
科学领域:
- 儿科健康 儿科健康
- 慢性疾病管理 慢性疾病管理
- 以患者为中心的护理
背景情况:
- 青少年参与医疗保健决策对于诸如状细胞病 (SCD) 和1型糖尿病 (T1D) 等慢性疾病至关重要.
- 了解不同慢性病和种族群体对决策参与 (DMI) 的看法对于公平的护理至关重要.
研究的目的:
- 为了比较青少年和家长在SCD和T1D诊所访问中对DMI的看法.
- 确定特定的行为,促进或阻碍青少年参与医疗决策.
主要方法:
- 与青少年 (N=14患有SCD,N=19患有T1D) 和他们的父母进行了半结构化的定性访谈.
- 用一种诱导理论方法分析了关于青少年,家长和临床医生与DMI相关的行为采访数据.
主要成果:
- 与DMI相关的青少年,家长和临床医生的行为在SCD和T1D组中基本相似.
- 关键的差异包括SCD青少年有时做出独立的决定,父母作为T1D青少年的主要沟通者,临床医生根据条件不同地指导讨论.
结论:
- 信任的患者-临床医生关系和特定的父母/临床医生行为对于促进青少年DMI至关重要.
- 量身定制的方法可以加强青少年参与医疗决策,潜在地改善健康结果,特别是在多样化的人口中.
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