在实体瘤瘤学中评估患者健康相关值的门户启用诱导:定性内容分析
Carrie Sha1, Erin Santos2, Jaime Gilliland2
1Weill Cornell Medical College, New York, New York, USA.
Cancer
|November 2, 2025
概括
电子患者门户有效地捕获固体瘤癌症患者的健康相关值 (HRV),反映了面对面的讨论. 这种数字化方法增强了患者与临床医生的沟通,并为个性化护理提供了宝贵的见解.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 以患者为中心的护理
背景情况:
- 电子患者门户越来越多地被采用,以提高患者与临床医生的沟通和护理质量.
- 通过数字平台评估与健康相关的价值观 (HRV) 对于了解患者需求至关重要.
- 这项研究将通过患者门户网站引起的HRV与传统的面对面讨论引起的HRV进行比较.
研究的目的:
- 评估患者门户引发的HRV是否与护士领导的面对面讨论的主题保持一致.
- 识别患者价值观的数字诱导中出现的独特主题.
- 评估电子门户在瘤学中捕获患者值的实用性.
主要方法:
- 五个实体瘤诊所的患者通过电子方式给出了HRV问卷.
- 从之前的面对面讨论中获得的理论框架被应用到主题内容分析中.
- 通过主题内容分析,分析了200名患者的反应.
主要成果:
- 确定了五个与面对面讨论一致的核心主题:癌症作为威胁,个性,沟通,社会联系和意义来源.
- 从门户网站的回复中发现的独特主题包括财务毒性和精神/生存福祉.
- 总共发送了1556份问卷,852名患者回答了问卷.
结论:
- 电子患者门户有效地引发了对固体瘤患者HRVs的宝贵见解.
- 基于门户的价值诱导捕捉了与面对面讨论相似的主题,支持可扩展性.
- 数字工具可以增强传统的方法来理解和讨论患者的价值观与临床医生.
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