法律标准如何促进公平获取电子人权?
1Professor of law, artificial intelligence, machine learning, and data science at the Emory University School of Law in Atlanta, Georgia.
AMA journal of ethics
|November 3, 2025
概括
可访问的电子健康记录 (EHR) 对公平的医疗保健至关重要. 然而,目前的EHR系统给残疾人带来了可访问性挑战,需要开发人员和临床医生更明确的义务.
科学领域:
- 医疗信息学 医疗信息学
- 关于残疾人的研究.
- 生物伦理学生物伦理学
背景情况:
- 电子健康记录 (EHR) 为患者赋权和数据可访问性提供了重大潜力.
- 当前的EHR系统往往会给各种残疾人带来障碍.
- 这种难以接近的情况加剧了现有的健康不平等.
研究的目的:
- 突出不可访问的电子人才资料的伦理和法律影响.
- 争取加强有关EHR可访问性的法律和道德义务.
- 确定需要对电子健康记录开发人员和医疗保健提供者提供更明确的责任.
主要方法:
- 对联邦法律和法规的文献综述,涉及到EHR可访问性.
- 关于公平获取健康信息的伦理框架的分析.
- 对当前可访问性缺陷和建议解决方案的论证综合.
主要成果:
- 现有的联邦对可访问的EHR的保护是不够的.
- 在确保残疾人获得公平的电子健康登记权方面存在重大差距.
- 当前的法律和道德框架并没有充分解决EHR可访问性挑战.
结论:
- 对于EHR开发人员来说,更明确地定义的义务对于确保可访问性至关重要.
- 临床医生必须遵守更高的标准,以保证所有患者能够使用易于访问的电子病历.
- 解决EHR难以获得的问题是实现健康平等的关键一步.
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