状细胞战士讨论了息治疗:不是我们的话,我们需要它
Kemmarie C Beal1, Coretta Jenerette2, Rachael O Ajiboye3
1Kemmarie C. Beal, MSN, PMHNP-BC, FNP-BC , is PhD Candidate, University of Massachusetts Amherst, MA.
概括
在状细胞疾病中,息护理未得到充分利用. 患者反显示,他们更喜欢混合分娩,心理健康支持和文化敏感的语言,以改善症状管理和生活质量.
科学领域:
- 血液学 血液学 血液学
- 抚慰性护理是一种缓解性护理.
- 定性研究是指质量研究.
背景情况:
- 状细胞疾病 (SCD) 是一种严重的遗传性疾病,通常导致严重的疼痛,症状和过早死亡.
- 息治疗在SCD中未得到充分利用,尽管它有改善生活质量的潜力.
- 患者的观点对于设计有效的干预措施至关重要.
研究的目的:
- 收集SCD患者的反,以告知息护理干预措施的设计.
- 为了确定患者对干预形式,交付和内容的偏好.
- 为解决SCD患者的症状管理和支持性护理方面的未满足需求.
主要方法:
- 使用了定性描述方法.
- 12名患有SCD的成年人参加了虚拟焦点小组.
- 对转录的数据进行了主题分析.
主要成果:
- 三个主题出现了:干预设计/交付,SCD成功的衰老,以及围绕"息治疗"的耻辱.
- 患者更喜欢混合分娩,一致的参与,自我照顾,情绪健康和社会联系.
- 确定了对心理健康支持,教育和灵活,量身定制的编程的强烈需求.
结论:
- 对SCD的息护理干预必须在术语和交付方面与文化保持一致.
- 建议以患者为中心,由护士领导的项目来改善症状管理和支持性护理.
- 解决对息治疗的耻辱和误解对于吸收至关重要.
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