限制下的照顾:儿童糖尿病中父母需求的定性研究在扎博尔
SeyedPouria Hedayati1, Alireza Sotoudeh1, Fatemeh Mohabati1
1Department of Healthcare Services Management, School of Health, Zabol University of Medical Sciences, Zabol, Iran.
伊朗农村的1型糖尿病 (T1DM) 儿童的父母面临着重大的情感,社会和医疗保健挑战. 解决这些未得到满足的需求需要有针对性的支持,社区教育来打击耻辱,并改善家庭的医疗保健机会.
科学领域:
- 儿科内分泌学 儿科内分泌学
- 质量健康研究 质量健康研究
- 农村健康差异 农村健康差异
背景情况:
- 1型糖尿病 (T1DM) 的管理需要广泛的家庭支持.
- 农村和资源稀缺的地区对慢性病的护理提出了独特的挑战.
- 了解父母的生活经验对于有效的干预开发至关重要.
研究的目的:
- 探索父母照顾T1DM儿童在伊朗扎博尔的生活经验.
- 确定这些家庭在农村,服务不足的环境中的具体支持需求.
- 为培养T1DM家庭支持的文化适当干预措施的发展提供信息.
主要方法:
- 定性现象设计. 定性现象设计.
- 与36名患有T1DM (4-17岁) 儿童的父母进行半结构面试.
- 使用Braun和Clarke的框架进行主题分析,并遵守COREQ的指导方针.
主要成果:
- 父母们报告说,他们的情绪疲很大,缺乏实际支持.
- 由于文化误解导致的社会孤立和耻辱是普遍存在的.
- 医疗保健系统面临的挑战包括有限的专家准入,教育不足,财政紧张和资源短缺,农村隔离加剧了这些问题.
结论:
- 扎博尔的家庭经历了与儿童T1DM相关的大量未满足的情感,社会和系统需求.
- 干预措施应侧重于结构化的同行支持和文化敏感的教育,以减少耻辱感.
- 扩大获得负担得起的医疗保健的机会对于改善服务不足的农村地区家庭的结果至关重要.
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