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评估类风湿性关节炎患者经历的活动限制,以告知适当选择患者报告结果的措施:一种定性研究

Heqin Yang¹, Asmita Priyadarshini Khatiwada¹, Jeffrey R Curtis²

¹Department of Health Outcomes Research and Policy, Auburn University, Auburn, AL, USA.

Journal of patient-reported outcomes

|November 4, 2025

概括

类风湿性关节炎 (RA) 患者经历各种日常活动限制. 患者报告结果测量信息系统 (PROMIS) 的尺度如PF SF10a,疲劳SF7a和APS SF4a可以帮助测量这些影响.

科学领域:

类风湿病学类风湿病学
康复医学康复医学康复医学
健康结果研究研究结果

背景情况:

类风湿性关节炎 (RA) 显著影响日常活动和身体功能.
综合评估RA相关的局限性对于有效的患者管理至关重要.
现有的测量工具可能无法完全捕捉RA相关活动限制的频谱.

研究的目的:

为了确定患有类风湿性关节炎 (RA) 的个体的日常活动限制.
为了确定哪些患者报告结果测量信息系统 (PROMIS) 缩写形式 (SF) 秤可以有效地测量这些局限性.
将确定的局限性与国际功能,残疾和健康分类 (ICF) 框架联系起来.

主要方法:

针对RA的成年人进行了基于网络的横截面调查.
使用了PROMIS 上肢 (UE) SF7a,身体功能 (PF) SF8b和任务难度等级.
响应使用ICF框架进行编码,PROMIS SF尺度与ICF类别联系在一起.

主要成果:

大多数RA受访者报告了中度至严重的身体功能限制.
所有9个ICF活动和参与 (A&P) 子类别都与患者报告的限制有关.
PROMIS PF SF10a,UE SF7a,PF SF8b,疲劳SF7a和APS SF4a被映射到各种ICF A&P子类别中,但一些限制 (例如驾驶) 仍然没有被测量.

结论:

关节炎患者面临着超出身体功能范围的各种活动限制,包括社会和沟通方面.
PROMIS PF SF10a显示了有效测量特定日常活动限制的潜力.
建议使用PROMIS Fatigue SF7a和APS SF4a来更全面地评估RA对一般任务和社交互动的影响.

关键词:

日常生活中的活动.关节炎,类风湿性关节炎内容验证内容验证功能,残疾和健康的国际分类.患者报告的结果衡量了患者报告的结果.

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