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指导多发性硬化症护理:对MS在21世纪指导小组中的MS2013年共识声明的更新
Raed Alroughani1,2, Elisabeth G Celius3, Helen Gray4
1Division of Neurology, Amiri Hospital, Sharq, Kuwait. alroughani@gmail.com.
Neurology and therapy
|November 5, 2025
概括
对多发性硬化症 (MS) 护理的最新共识声明强调及时获得治疗和患者参与. 持续的研究对于解决逐步增长的MS和老龄化人口的未满足需求至关重要.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 医疗保健管理的管理
背景情况:
- "21世纪的MS" (MS21) 倡议在2013年为多发性硬化症 (MS) 护理制定了标准,旨在提供个性化的治疗和免于疾病.
- 本更新评估了自2013年以来的进展,并确定了改善多发性硬化症护理标准的优先领域.
研究的目的:
- 根据进展和不断变化的需求,更新MS护理的共识陈述.
- 确定优化多发性硬化护理,患者参与和研究的优先领域.
主要方法:
- 一个两轮的Delphi过程,投票小组包括MS患者 (PwMS),患者倡导团体 (PAG) 和医疗保健专业人员 (HCP).
- 根据达成一致的门 (≥75%) 和自由文本反,在13个国家制定了共识陈述,响应率为70%.
主要成果:
- 最初的MS护理原则从7个扩展到14个,包括老化PwMS,MS预防,渐进性MS和复髓化治疗等主题.
- 医疗保健专家和PwMS/PAGs所确定的最高优先事项是"在诊断后获得快速和果断的治疗".
结论:
- 专业人士和利益相关者之间的合作对于实现PwMS更新的MS21愿景至关重要.
- 改进的关键领域包括获得适当的护理,加强PwMS参与决策,以及为未满足的MS需求进一步的研发.
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