照顾患有肠道衰竭的孩子在家庭上进行肠胃营养:一个范围审查
Mary Beth Hovda Davis1, Valerie Boebel Toly2, Erin Weber3
1University of Iowa College of Nursing, Iowa City, Iowa, USA.
JPEN. Journal of parenteral and enteral nutrition
|November 7, 2025
概括
在家里照顾患有肠道衰竭的孩子会给家庭照顾者带来巨大的负担,影响他们的福祉. 加强培训和支持计划对于改善护理人员准备和家庭结果至关重要.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 护理人员支持护理人员支持
- 主页 医疗保健 医疗保健
背景情况:
- 患有肠衰竭的儿童需要复杂的家庭护理,这给家庭护理人员带来了巨大的负担.
- 这种照顾者的角色往往会导致家庭成员之间增加压力,焦虑和抑郁.
- 了解护理人员的经验对于医疗保健提供者来说至关重要,以更好地为家庭进行家庭护理做好准备.
研究的目的:
- 探索家庭护理人员为患有肠道衰竭的儿童提供家庭肠道营养的经验.
- 识别有关护理人员准备,福祉和日常经验的文献上的差距.
主要方法:
- 根据Arksey和O'Malley的方法进行了范围审查.
- 在主要数据库 (PubMed,CINAHL,Scopus,Embase) 进行相关文献搜索.
- 来自15项纳入研究的数据被提取并根据主题分析.
主要成果:
- 该审查确定了15项相关研究,重点关注护理经验的各个方面.
- 关键主题包括护理人员生活质量 (5项研究),出院准备 (5项研究) 和护理人员福祉 (3项研究).
- 两项研究专门讨论了提供家庭护理的日常经验.
结论:
- 虽然为家庭准备家庭护理可以提高准备力,但它显著增加了护理人员的负担.
- 开发全面的培训,支持系统和干预措施至关重要.
- 这种计划可以减轻护理人员的压力,并改善儿童及其家庭的健康状况.
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