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癌症治疗后患者的认知投诉:了解瘤学家的陈述和管理实践
Léa Baillat1,2, Myriam Pannard3,4, Charlotte Bauquier3,4
1Unité Inserm 1290 RESHAPE (Research On Healthcare Performance, Ex-HESPER), Lyon, France. lea.baillat4@univ-lyon2.fr.
概括
癌症治疗可能会导致认知障碍,但由于缺乏培训和资源,瘤学家往往会忽视它们. 提高认识和创建结构化护理网络对于改善患者生活质量至关重要.
科学领域:
- 在瘤学瘤学.
- 神经科学是一个神经科学.
- 患者的生活质量.
背景情况:
- 癌症治疗后的认知障碍很常见,但未得到充分承认.
- 目前的评估受到标准化协议,证据和资源的缺乏所阻碍.
- 患者的生活质量受到这些未被充分解决的认知问题的重大影响.
研究的目的:
- 探索瘤学家关于癌症治疗相关认知障碍的知识,感知和实践.
- 从患者的生活质量角度了解这些问题.
- 确定癌症患者管理认知障碍的障碍和促进因素.
主要方法:
- 质量,基于社区的研究,涉及法国20名瘤学家.
- 半结构面试涵盖了沟通,信息,感知和管理.
- 在患者和研究人员的参与下进行反思性的专题分析.
主要成果:
- 瘤学家承认认知障碍是治疗的副作用,但认为它们是多因素的,经常被轻视.
- 这些问题很少被主动讨论,需要明确的患者投诉.
- 障碍包括缺乏培训,繁重的工作量,有限的专业资源,诊断的不确定性和差的跨学科协调.
结论:
- 治疗后的认知障碍是瘤学中一个重要的未满足的需求.
- 改进的专业培训,系统的生活质量整合和结构化的护理网络是必不可少的.
- 推开发简单的临床工具,加强专家访问和团队意识,以实现以患者为中心的多学科方法.
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