限制生命,非恶性慢性疾病的支持性护理:范围审查
Joshua Sher1,2, Gagan Aradhya1,2, Anna Lei1,2
1College of Health Medicine and Wellbeing, The University of Newcastle, Newcastle, New South Wales, Australia.
BMJ supportive & palliative care
|November 9, 2025
概括
慢性非癌症疾病的支持性护理是可用的,重点是教育和症状管理. 对这些患者的社会和精神支持存在差距.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 慢性疾病管理 慢性疾病管理
- 医疗保健服务研究 医疗服务研究
背景情况:
- 对癌症患者来说,支持性护理已经很成熟.
- 对于对非恶性,限制生命的慢性疾病的支持性护理实施的理解有限.
研究的目的:
- 进行对有生命限制的慢性疾病的成年人支持性护理干预措施的范围审查.
- 确定提供支持性护理的条件类型,目标和性质.
- 评估这些干预措施在临床环境中的可复制性.
主要方法:
- 从2000年到2024年2月,搜索了四个电子数据库.
- 包括经合组织成年人心血管,呼吸道,脏,肝脏,神经或遗传慢性疾病的研究.
- 提取了关于病情类型,护理目标,支持性质 (精神,心理,社会,信息,实践) 和临床复制的数据.
主要成果:
- 包括33项研究 (39份报告),涉及3701名参与者.
- 在神经和脏疾病中,最常描述的是支持性护理.
- 共同目标包括症状管理,决策和减少医疗服务利用.
- 干预主要是教育/信息,实践或心理;精神护理是最不常见的.
- 多学科团队通过面对面的会议或电话提供护理.
结论:
- 对于限制生命的慢性疾病,有一系列支持性护理干预措施.
- 目前的干预措施通常集中在教育和症状管理上.
- 在提供社会和精神支持方面发现了差距.
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