针对免疫介导炎症性疾病个性化支持性医疗保健:基于主观健康体验模型对患者需求和行为进行定性探索
Tessa S Folkertsma1,2,3, Greetje J Tack1, Robert M Vodegel2
1Department of Gastroenterology, Frisius MC, Henri Dunantweg 2, 8934 AD, Leeuwarden, The Netherlands.
International journal of integrated care
|November 10, 2025
概括
针对免疫媒介性炎症性疾病 (IMIDs) 的个性化支持性护理至关重要. 主观健康体验 (SHE) 模型有助于通过了解患者需求和医疗保健服务来定制护理,改善生活质量.
科学领域:
- 医学和健康科学医学和健康科学
- 患者的护理和支持.
- 定性研究方法 定性研究方法
背景情况:
- 针对免疫媒介炎症疾病 (IMIDs) 个性化支持性护理是具有挑战性的,因为目前的洞察力有限.
- 加强支持性护理显著改善患者的生活质量和医疗保健结果.
- 主观健康体验 (SHE) 模型为基于疾病接受和控制的患者细分提供了一个框架.
研究的目的:
- 探索每个SHE部门的患者特征 (行为,问题,需求).
- 确定每个SHE段所需的支持性护理 (什么以及如何).
- 制定一个结构化的框架,以使支持性护理与SHE部门保持一致.
主要方法:
- 定性研究,包括小组讨论和个人采访.
- 参与了19名医疗保健专业人员 (风湿病学,胃肠病学,皮肤病学) 和18名IMID患者 (风湿性关节炎,脊椎关节炎,克罗恩病,性结肠炎,牛皮,性炎).
主要成果:
- 在不同的IMID中观察到医疗保健需求的一致模式.
- 患者优先关注和承认,而医疗保健专业人员专注于结构和规划.
- 详细的SHE细分描述有助于创建支持性护理的结构化框架.
结论:
- SHE框架有效地指导了跨疾病,专业人员和护理水平的支持性护理的协调.
- 该SHE模型增强了IMID管理中支持性护理的运营性使用.
- 实施SHE框架可以改善IMID患者的个性化和护理连续性.
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