为过渡打造一座桥梁:一项以用户为导向的研究,研究为患有的青少年开发过渡诊所
Ole Abildgaard Hansen1,2, Christoph P Beier1,2, Anthony C Smith2,3
1Department of Neurology, Odense University Hospital, Odense, Denmark.
Health informatics journal
|November 10, 2025
概括
患有的青少年 (AWE) 需要更好的医疗保健过渡. 联合过渡诊所与患者和临床医生共同设计,提供一种协作解决方案,以支持AWE转向成人护理.
科学领域:
- 医疗保健管理的管理
- 患者过渡支持支持 患者过渡支持
- 治疗的护理
背景情况:
- 患有的青少年 (AWE) 面临着从儿科到成人医疗保健过渡的挑战.
- 现有的过渡模式可能无法充分满足AWE的复杂需求.
研究的目的:
- 开发和设计联合过渡诊所,一个协作医疗保健模式.
- 支持患有的青少年在从儿科到成人护理的过渡期间.
主要方法:
- 采用了参与式设计 (PD) 方法,涉及AWE,家长,护士和医生.
- 进行代开发和共同设计研讨会.
- 整合了用户提出的想法,专注于"桥梁"的概念与"知识长鹿"的元素.
主要成果:
- 成功开发了联合过渡诊所,解决了AWE的确定的需求和偏好.
- PD方法促进了患者和家长参与干预设计.
- 临床设计已经准备好进行试点测试.
结论:
- 联合过渡诊所是一个有效的,以患者为中心的组织干预.
- 参与式设计是开发医疗保健过渡解决方案的宝贵方法.
- 开发的诊所支持AWE的自我管理和医疗保健需求.
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