探索子宫内膜异位症社区需要共同创建EndoZone数字健康平台:一个定性研究研究
Diksha Sirohi1, Cecilia Hoi Man Ng2, Niranjan Bidargaddi3
1Robinson Research Institute, Adelaide Medical School, University of Adelaide, 55 Ground Floor King William Road North Adelaide, North Adelaide, 5006 , Australia. d.sirohi@uqconnect.edu.au.
BMC women's health
|November 11, 2025
概括
对澳大利亚的子宫内膜异位症患者及其支持者而言,需要一个基于证据的数字平台. 这个平台应该提供量身定制的信息和社区支持,以管理症状和改善福祉.
科学领域:
- 数字健康数字健康
- 患者支持 患者支持
- 慢性疾病管理 慢性疾病管理
背景情况:
- 子宫内膜异位症影响全球10-14%的女性,导致痛经和并发性症状.
- 意识低导致症状正常化,诊断/治疗延迟.
- 在受影响的个人中,在线信息搜索是很常见的.
研究的目的:
- 探索受子宫内膜异位症影响的个体的数字需求.
- 为共同创建基于证据的数字平台EndoZone提供信息.
主要方法:
- 在澳大利亚各地进行的8个半结构化焦点小组 (n=36) (2020年3月至5月).
- 参与者包括青少年 (16-18岁),患有子宫内膜异位症的成年人 (≥19岁) 和他们的支持者 (父母/伴侣).
- 使用NVIVO 12软件对转录的焦点小组讨论进行主题分析.
主要成果:
- 确定了对子宫内膜异位症信息的中央枢纽的需求.
- 突出了对整体症状管理和福祉策略的需求.
- 强调需要独特的数字功能来增强用户体验.
结论:
- 基于证据的数字平台对澳大利亚子宫内膜异位症社区非常有价值.
- 青少年,年轻人和支持者有不同的信息需求.
- 一个定制的数字平台应该提供及时的信息,并促进社区网络.
更多相关视频
07:20Intraoperative Detection of Subtle Endometriosis: A Novel Paradigm for Detection and Treatment of Pelvic Pain Associated with the Loss of Peritoneal Integrity
Published on: December 21, 2012
16.4K
11:21Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
8.6K
相关概念视频
02:07Oogenesis
68.9K
In human women, oogenesis produces one mature egg cell or ovum for every precursor cell that enters meiosis. This process differs in two unique ways from the equivalent procedure of spermatogenesis in males. First, meiotic divisions during oogenesis are asymmetric, meaning that a large oocyte (containing most of the cytoplasm) and minor polar body are produced as a result of meiosis I, and again following meiosis II. Since only oocytes will go on to form embryos if fertilized, this unequal...
68.9K
01:21Dimensions of Health and Illness
10.3K
The factors influencing the health-illness continuum can be internal or external and may or may not be under conscious control. They are related to the following eight human dimensions, and each dimension is interrelated to one other.
10.3K