评估甲状腺癌患者如何使用在线资源和社交媒体获取健康信息
Laura Samson1, Sarah Nicole Hamilton2,3, Eric Berthelet2,3
1Faculty of Medicine, MD Undergraduate Program, University of British Columbia, Vancouver, Canada.
概括
甲状腺癌患者经常使用互联网获取健康信息,像YouTube这样的社交媒体平台为个人经验和治疗选择提供了有价值的见解. 患者发现这些在线资源对教育和决策有益.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 年轻人占甲状腺癌患者的很大一部分.
- 这一群人群广泛使用互联网和社交媒体来收集信息.
研究的目的:
- 调查甲状腺癌患者如何利用在线资源,特别是社交媒体.
- 评估这些平台对患者理解和决策的影响.
主要方法:
- 采用了混合方法分析.
- 在2023年6月至12月期间,三级癌症中心对102名甲状腺癌患者进行了调查.
- 55名患者 (54%的响应率) 完成了关于互联网和社交媒体习惯的37个问题调查.
主要成果:
- 98%的参与者使用互联网获取信息,91%的人寻找甲状腺癌细节.
- 42%的人使用社交媒体获取甲状腺癌信息;年轻的患者更频繁地使用社交媒体.
- YouTube (95%) 和Facebook (38%) 是最受欢迎的;搜索集中在个人体验 (62%) 和放射性治疗 (58%) 上.
- 社交媒体用户发现平台有用 (88%),增强理解 (76%) 和告知治疗决策 (39%).
结论:
- 社交媒体平台,特别是YouTube,对于甲状腺癌患者获得健康信息越来越重要.
- 患者认为社交媒体是甲状腺癌教育的宝贵工具,促进了联系,并改善了信息的可访问性.
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