肌缩侧面硬化症患者如何感知呼吸干预:一项混合方法研究,以告知实施努力
Jason Ackrivo1,2, Danny Bracy3, Lauren B Elman2
1Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia.
患有ALS的患者对呼吸干预措施表现出不同的兴趣. 了解患者的偏好和障碍是改善使用非侵入性通风 (NIV) 等治疗方法的关键,以获得更好的结果.
科学领域:
- 神经学 神经学
- 肺部病理学 肺部病理学
- 患者为中心的护理
背景情况:
- 肌缩侧面硬化症 (ALS) 经常导致呼吸衰竭,需要及时干预.
- 目前对ALS患者的处方呼吸护理的采用仍然不够理想.
- 了解患者的观点对于加强呼吸干预措施的采用至关重要.
研究的目的:
- 描述患者对ALS呼吸系统护理的看法和偏好.
- 确定实施策略,以改善ALS呼吸干预措施的使用.
主要方法:
- 未来的,多中心的,混合方法的观察性研究.
- 与24名最近被诊断患有ALS (12个月内) 的患者进行半结构面试.
- 纳入标准:强迫生命能力<80%预测正常或呼吸障碍/骨障碍的存在.
主要成果:
- 十名参与者使用呼吸疗法,其中8人使用非侵入性通风 (NIV).
- 开始治疗的关键因素:医生的建议和异常的PFTs.
- 患者更喜欢动感和阅读格式来学习设备;肺体积招募比NIV更受欢迎.
- 对于NIV的犹源于面具的不适,幽闭恐惧症和感知到缺乏益处.
结论:
- 在早期的ALS中,对呼吸系统护理的接受性有很大差异.
- 定制教育方法和解决特定障碍 (例如NIV不适) 是必不可少的.
- 实施策略必须考虑患者的动机,并提供多样化的学习格式,以有效地采用家庭呼吸护理.
更多相关视频
09:37Evaluation of Respiratory Muscle Activation Using Respiratory Motor Control Assessment RMCA in Individuals with Chronic Spinal Cord Injury
Published on: July 19, 2013
09:24Repeated Measurement of Respiratory Muscle Activity and Ventilation in Mouse Models of Neuromuscular Disease
Published on: April 17, 2017
相关概念视频
Assessment of Respiration
Subjective Assessment: Nurses interview the patient to gather information directly during the subjective assessment. It includes questions about the individual's medical history, medications, and symptoms, focusing on past respiratory conditions like...
Assessment of Airway, Skin Color, and Use of Accessory Muscles
Introduction
The initial evaluation of a patient's respiratory system...
Assessment of Ventilation II: Respiratory Depth and Rhythm
Respiratory depth measures the volume of air inhaled or exhaled during a breath. It can vary from shallow to deep and typically remains consistent when a person is at rest or asleep. Occasionally, individuals will automatically inhale deeply, known as sighing, which inflates the lungs with more air than normal breathing.
To assess respiratory depth, observe the degree of chest excursion or movement:
Respiratory Assessment: Purpose and Indications
Objectives and Importance:
The primary goal of respiratory assessment is to evaluate patients at early risk of clinical deterioration. Since respiratory distress often precedes other signs of declining health, breathing patterns and sounds become a...
Chronic Obstructive Pulmonary Disease-V: Nursing Management
Assessment
Mechanical Ventilation III: Noninvasive Ventilation
Noninvasive Positive-Pressure Ventilation...
