接受透析的父母如何看待孩子们提供的支持? 一个混合方法的研究,以更好地识别年轻的护理人员
Safiya Arrob1, Julie Glatz1, Filiz Eren1
1Université Paris Cité, Laboratoire de psychopathologie et processus de santé, F-92100 Boulogne-Billancourt, France
概括
透析的家长报告说,孩子的支持很低,家庭透析患者获得的支持较少. 这凸显了考虑年轻护理人员的必要性.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 儿科 儿科 儿科
- 心理学 心理学 心理学
背景情况:
- 年轻的护理人员 (年龄6-25岁) 为生病的亲属提供支持.
- 之前没有研究集中在接受透析的父母的年轻照顾者身上.
- 透析影响家庭动态,需要了解儿童支持角色.
研究的目的:
- 探索家长在透析期间对儿童支持的经验.
- 为了比较家庭透析和机构透析之间的支持经验.
主要方法:
- 对30名透析的家长进行调查 (19个家庭,11个机构).
- 与15名家长进行半结构面试.
- 评估社会人口统计,医疗信息,自主权,生活质量和儿童抚养费.
主要成果:
- 父母报告说,孩子的整体支持 (情感,实际,个人照顾) 很低.
- 住院的家长比在家进行透析的患者感受到更高的儿童支持.
- 家庭透析揭示了特定的儿童支持形式和相关的儿童焦虑/悲伤.
结论:
- 强调需要承认和支持透析患者的子女.
- 对家庭动态和儿童观点的进一步研究至关重要.
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