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Assessment and Communication for People with Disorders of Consciousness
Published on: August 1, 2017
有争议的疾病和沟通:在线讨论论坛中定位长期Covid
Sally Sargeant1, Sarah Wilkinson1, Mimirose Lorraway2
1Faculty of Health, Southern Cross University, Coolangatta, Queensland, Australia.
长期COVID患者经常因诊断不确定性而面临医疗保健解雇. 验证患者经验和承认症状的合法性对于支持康复和改善这种后COVID状况的结果至关重要.
科学领域:
- * 医学社会学 医学社会学
- * * 公共卫生 公共卫生
- * 数字健康 数字健康
背景情况:
- *长期COVID是世卫组织认可的COVID-19后的疾病,由于未知原因和诊断困难,它带来了挑战.
- * 患者经常在寻求长期COVID症状的医疗保健时报告解雇和缺乏验证的经历.
- *了解患者的体验对于改善这种复杂疾病的医疗保健提供至关重要.
研究的目的:
- * 探索长期COVID患者寻求医疗保健的经验.
- * 在在线健康论坛中分析患者对症状合法性和诊断解雇的观点.
主要方法:
- *对2023年6月至7月两个在线论坛 (Mayo Clinic Connect和Reddit) 的305条帖子进行了定性分析.
- *模板分析确定了12个相关的论坛主题.
- * 感应主题分析揭示了患者体验中的关键主题.
主要成果:
- *出现了三个主要主题:"时间的概念"",症状合法性的重要性"和"对诊断断断的回应".
- * 患者强调了由医疗保健专业人员验证他们的症状的重要性.
- *经常报告诊断失败的经历,影响了患者的信任和护理.
结论:
- * 医疗保健专业人员在验证患者体验方面发挥着至关重要的作用,即使没有正式的长期COVID诊断.
- * 承认长期COVID的异质性和诊断挑战对于支持患者康复至关重要.
- *需要改善沟通和验证,以解决长期COVID患者的未满足需求.
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