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Updated: Jan 11, 2026

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开发国家血友病注册表的最低数据集

Boshra Farajollahi1, Mohammadjavad Sayadi2,3, Babak Abdolkarimi4

  • 1Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Iran.

Health information management : journal of the Health Information Management Association of Australia
|November 13, 2025
PubMed
概括

这项研究为伊朗的血友病登记处开发了一个最低数据集,为改善患者护理和研究标准化数据收集. 经过验证的58项数据集有助于有效管理这种慢性出血障碍.

关键词:
美国国家血友病注册局临床数据标准 临床数据标准血友病流行病学 血友病的流行病学血友症A是一种血友病.血友病B型 血友病B型 血友病B型管理健康信息 管理健康信息卫生信息系统 卫生信息系统罕见的出血障碍 罕见的出血障碍登记处 登记处 登记处 登记处

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