儿童癌症护理经验 (PACE) 问卷:开发和验证一种新型仪器
Sona N Kocinsky1, Meghan E Lindsay2, Sophia De Oliveira1
1Department of Pediatrics (S.N.K., S.D.O., P.A.), Yale School of Medicine, New Haven, Connecticut, USA.
Journal of pain and symptom management
|November 13, 2025
概括
一个由家长报告的新问卷,儿科癌症护理经验 (PACE) 已开发,以评估晚期癌症儿童的护理质量. 这种经过验证的工具将有助于未来的研究和质量改进计划.
科学领域:
- 儿科瘤学 儿科瘤学
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
背景情况:
- 患者报告的结果措施对于评估医疗保健质量至关重要.
- 在儿科晚期癌症护理中,对经过验证的家庭报告的工具存在重大需求.
研究的目的:
- 开发,完善和验证一种新的父母报告的工具,用于评估晚期癌症儿童的护理质量.
主要方法:
- "儿童癌症护理经验" (PACE) 问卷是通过专家审查和家长采访开发和改进的.
- 进行了一项多中心,横截面的试点研究,涉及158名患有晚期癌症儿童的父母/监护人.
- 评估了心理测量特性,包括探索性因子分析 (EFA),内部一致性和构造有效性.
主要成果:
- 该PACE问卷表现出强大的面貌和内容有效性.
- EFA确定了一个三要素模型:治疗联盟,协作护理和预后沟通/共享决策.
- 取得了足够的内部一致性 (克朗巴赫的α:0.8-0.9) 和构造有效性.
结论:
- PACE问卷是一个严格开发的,由家长报告的工具,用于评估儿科晚期癌症的护理质量和经验.
- 系统地使用PACE可以支持未来的研究和改善儿科瘤治疗的质量.
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