cpThrive:一个关于发展的故事
DanaKai Bradford1, Michelle Jackman2, Alex Griffin2
1Australian e-Health Research Centre, CSIRO, Brisbane, QLD, Australia.
Studies in health technology and informatics
|November 14, 2025
概括
大脑 (CP) 是一种严重的儿童残疾,没有治愈方法. 一个新的移动健康应用程序与家庭和专家共同设计,以帮助优先考虑和选择安全的,基于证据的CP治疗.
科学领域:
- 儿科神经学和残疾研究.
- 移动健康 (mHealth) 干预发展干预
- 在慢性儿童疾病中以家庭为中心的护理.
背景情况:
- 脑 (CP) 是儿童最常见的身体残疾,也是儿童死亡的主要原因.
- CP 的终身,复杂的性质给家庭在导航治疗选择时带来了重大挑战.
- 现有的资源往往缺乏个性化,这使得家庭很难将干预措施与优先事项相协调.
研究的目的:
- 为受脑影响的家庭设计并开发以用户为中心的移动健康 (mHealth) 工具.
- 为家庭提供以证据为基础的信息,以进行个性化治疗决策.
- 根据特定家庭的优先事项,简化识别和过干预措施的过程.
主要方法:
- 协作代码设计方法涉及具有CP实践经验的个人,临床医生,软件开发人员和mHealth研究人员.
- 利用焦点小组和研讨会来收集见解和告知应用程序开发.
- 集成功能,如逐步指南,搜索功能,治疗信息表和支持资源.
主要成果:
- 一个功能性的mHealth助手成功地被编码设计和开发.
- 该应用程序为治疗探索和选择提供了一个结构化的方法.
- 功能旨在支持明智,个性化的决策,与家庭优先事项保持一致.
结论:
- 与最终用户和专家共同设计的mHealth工具可以有效地解决复杂的医疗保健导航挑战.
- 开发的mHealth助手使家庭能够基于证据,个性化治疗脑的决策.
- 该应用程序将在全球范围内免费使用,促进更广泛地获得CP管理的决策支持资源.
更多相关视频
04:54Iterative Development of an Innovative Smartphone-Based Dietary Assessment Tool: Traqq
Published on: March 19, 2021
5.1K
05:56Implementation of Non-invasive Point of Care Transient Elastography for Evaluation of Liver Disease in Pediatric Populations with Cystic Fibrosis
Published on: August 29, 2025
422
相关概念视频
Preclinical Development: Overview
5.8K
Preclinical development consists of a series of tests that ensure the safety and efficacy of a new therapeutic compound before it is tested in humans. There are four main phases to this process. First, safety pharmacology tests are conducted to ensure the drug does not produce any acutely harmful effects. These tests examine parameters such as bronchoconstriction, cardiac dysrhythmias, blood pressure changes, and ataxia. Next, preliminary toxicological testing is performed to determine the...
5.8K
Cystic Fibrosis: Management
457
Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
Sinus disease and chronic...
Sinus disease and chronic...
457
Relationship Growth
193
Interpersonal relationships progress through stages, beginning with awareness and moving toward mutuality, where emotional connections deepen. While many relationships remain at moderate levels of mutuality, deeper connections form through self-disclosure, trust, and interdependence.Self-DisclosureSelf-disclosure involves revealing personal information, starting with surface-level details and gradually progressing to more intimate content. As trust grows, individuals feel more comfortable...
193
Primary Healthcare Services
1.9K
Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
1.9K
Patient-centered Care
2.9K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.9K
Clinical Trials
10.1K
Clinical trials are prospective experimental studies conducted on humans to determine the safety and efficacy of treatments, drugs, diet methods, and medical devices. Using statistics in clinical trials enables researchers to derive reasonable and accurate conclusions from the collected data, allowing them to make wise decisions in uncertain situations. In medical research, statistical methods are crucial for preventing errors and bias.
There are four phases in a clinical trial. A phase one...
There are four phases in a clinical trial. A phase one...
10.1K
