当治愈结束时:约旦成年患有血液性恶性瘤的人体验了息护理

Mohammad M Alnaeem¹, Hala Bawadi², Loai Abu Sharour³

¹School of Nursing, Al-Zaytoonah University of Jordan, Amman, Jordan.

Psychology, health & medicine

|November 14, 2025

概括

在约旦,患有末期血液性恶性瘤的患者往往缺乏及时的息治疗 (PC). 他们的经历揭示了严重的痛苦和未满足的需求,突出了生命终结关键支持的关键差距.

科学领域:

在瘤学瘤学.
抚慰性护理是一种缓解性护理.
定性研究是指质量研究.

背景情况:

血液性恶性瘤 (HMs) 呈现出侵略性,复杂的生命终端挑战.
息护理 (PC) 对于限制生命的疾病至关重要,但对HM患者来说,特别是在约旦,获得治疗是有限的.
及时的PC集成对于管理症状负担和改善生活质量至关重要.

研究的目的:

探索约旦末期血液恶性瘤成年患者的临终息护理经验.
了解患者对当前护理实践的看法,并确定未满足的需求.
为文化敏感和以患者为中心的息护理策略的发展提供信息.

主要方法:

使用现象学方法进行定性解释设计.
进行了深入的,非结构化的采访,对十名被诊断患有末期HMS的成年患者 (45-83岁) 进行了深入的,非结构化的采访.
专题分析以确定患者叙述中的反复出现的模式和经验.

主要成果:

患者经历了显著的身体和心理社会痛苦,包括延迟PC转诊,分散的沟通和情绪上的痛苦.
缺乏核心息护理要素导致被忽视和尊严受到损害的感觉.
患者通过接受和抵抗的结合来驾他们的疾病,经常从信仰,希望和精神实践中汲取力量.

结论:

约旦的末期HM患者面临着巨大的痛苦,并且经常接受的护理不足以提供理想的息支持.
迫切需要及时,协调和整体的缓解干预措施,以适应文化背景.
确保富有同情心和以患者为中心的护理对于在生命结束过程中保持尊严和生活质量至关重要.

关键词:

经验经验经验经验经验血性恶性瘤血性恶性瘤抚慰性护理是一种缓解性护理.患者患者患者患者患者患者患者现象学的现象学.

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