在安全网医院了解年轻人患有慢性疾病的经历:挑战,应对和弹性
Clarisa Wijaya1, Emily G Lattie2, Caitlin S Sayegh3,4
1Department of Psychology, University of Illinois Chicago, Chicago, IL, USA.
概括
患有慢性疾病的青少年和年轻人 (AYA),特别是少数群体中的年轻人,面临着身体和情绪上的挑战. 尽管如此,他们通过个性化应对策略表现出性,突出了需要量身定制的支持.
科学领域:
- 医学社会学 医学社会学
- 青少年医学 青少年医学
- 健康差异 在健康上的差异
背景情况:
- 慢性疾病显著影响青少年和年轻人 (AYA).
- 少数AYA人群在医疗保健环境中经常面临独特的挑战.
- 了解生活经验对于有效的支持至关重要.
研究的目的:
- 探索患有慢性疾病的种族和种族少数群体AYA的生活经验.
- 为了确定这一群体的挑战和弹性过程.
- 为文化响应性干预提供信息.
主要方法:
- 定性研究涉及采访19名患有慢性疾病的AYA (16-20岁).
- 专题分析被用来编码和分析采访数据.
- 调查结果由AYA的社区咨询委员会验证.
主要成果:
- 四个关键主题出现了:身体影响,生活限制,情感福祉,以及对健康的看法.
- 参与者报告了症状,副作用和限制对身体和情感健康的负面影响.
- 通过适应性,个性化的应对策略来证明弹性,以减轻痛苦.
结论:
- 患有慢性疾病的少数AYA经历了重大的身体和情绪负担.
- 个性化应对机制对于恢复力和缓冲痛苦至关重要.
- 文化敏感和适合年龄的干预措施对于支持这个弱势群体至关重要.
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