开发一个可访问的离散选择调查,以确定老年痴呆症成年人的支持性护理偏好
Anne M Turner1, Jean O Taylor2, Claire E Child3
1Department of Health Systems and Population Health, School of Public Health, University of Washington, Seattle, WA, USA; Department of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, USA.
概括
以人为中心的设计为痴呆症患者创建了一个可访问的调查,以表达护理偏好. 这种方法确保了他们的声音在关于支持性护理过渡的决策中被听到.
科学领域:
- 老年学是一门学科.
- 人与计算机的交互
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患有痴呆症的老年人经常被排除在护理决策之外,因为他们的病情进展.
- 从痴呆症患者 (PLWD) 和他们的护理伙伴 (CP) 中获得偏好对于以人为中心的护理规划至关重要.
- 离散选择实验 (DCE) 可以捕捉偏好,但需要对PLWD进行可访问的设计.
研究的目的:
- 描述一个以人为中心的设计 (HCD) 过程,以开发一个可访问的DCE调查.
- 在PLWD和他们的CP中引起支持性护理的偏好.
- 为认知障碍患者适应DCE方法.
主要方法:
- 使用HCD,包括对PLWD,CP和提供者的采访.
- 基于用户反,代精细化了DCE属性,图标和格式.
- 与PLWD和CP进行试点测试和大声思考会议,以验证调查设计.
主要成果:
- 从采访中确定了12个关键属性,减少到DCE的3个.
- 通过保持一个属性不变并使用一个固定的替代方法来最大限度地降低认知负载,调整了DCE格式.
- 大声思考测试证实了参与者的理解和参与,使PLWD能够考虑未来的护理选择.
结论:
- 一个HCD方法成功地为PLWD创建了一个可访问的,以人为中心的DCE调查.
- 开发的调查有助于澄清支持性护理过渡的价值观.
- 这种方法提高了PLWD在护理决策中的纳入.
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