探索家长和自闭症青少年的观点,以告知倡导计划的适应情况
Meghan M Burke1, Amanda N Johnston1, Saury Ramos-Torres1,2
1Department of Special Education, Vanderbilt University, Nashville, TN USA.
Journal of developmental and physical disabilities
|November 17, 2025
概括
自闭症青少年和家长需要更好的方法来获得成人残疾服务. 反表明,父母更喜欢导航程序,而年轻人则希望通过视频学习成人生活和服务.
科学领域:
- 发展心理学 发展心理学
- 关于残疾人的研究.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 自闭症青少年及其家长在获得成人残疾服务方面面临重大障碍.
- 过渡到成年期需要专门的支持和复杂的服务系统的导航.
- 当前的干预措施可能无法充分满足自闭症患者及其家属在过渡期间的需求.
研究的目的:
- 收集自闭症青少年及其家长的反,以改善倡导计划.
- 为促进自闭症患者获得成人服务的干预措施的发展提供信息.
- 了解自闭症青少年和家长对于获得成人服务的支持的偏好.
主要方法:
- 对128名过渡年龄自闭症青少年的家长进行了个别采访.
- 与78名自闭症青少年进行了个别采访.
- 来自采访的数据被用来调整现有的倡导计划.
主要成果:
- 父母表示他们更喜欢一对一的导航程序,而不是以小组为基础的支持.
- 家长们对潜在的航海员的资格和质量表示担忧.
- 自闭症青少年表示,他们希望了解各种成人生活主题,包括不同类型的成人服务.
- 年轻人绝大多数喜欢基于视频的资源,以了解成人服务.
结论:
- 干预措施应考虑家长对个性化导航支持的偏好.
- 解决家长对导航员质量的担忧对于计划的成功至关重要.
- 开发可访问的,青少年友好的资源,如视频,对于改善服务获取至关重要.
- 未来的研究和实践应该专注于与自闭症青少年及其家人共同设计过渡服务.
相关概念视频
01:19Autism Spectrum Disorder
931
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
931
01:26Modeling in Therapy
368
Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
368
01:27Parenting Styles
571
Diana Baumrind's four parenting styles — authoritarian, authoritative, neglectful, and permissive — each influence children's socio-emotional development differently.
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
571
01:23Influence of Parents and Peers on Identity
450
Adolescence is a pivotal period of identity formation, during which individuals begin to answer questions central to their sense of self, such as "Who am I?" and "Who do I hope to become?" Both parents and peers play critical roles in guiding adolescents through this complex developmental phase.
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
450
01:18Cognitive Development During Adolescence
478
During adolescence, individuals experience significant cognitive development that enhances their understanding of others' emotions and thoughts, known as cognitive empathy. This period is marked by an increased ability to adapt to others' perspectives and a more nuanced understanding of others' mental states, a skill that is foundational for social problem-solving and conflict avoidance. The development of cognitive empathy relies heavily on the theory of mind — the...
478
02:34Empathy
10.0K
Some researchers suggest that altruism operates on empathy. Empathy is the capacity to understand another person’s perspective, to feel what he or she feels. An empathetic person makes an emotional connection with others and feels compelled to help (Batson, 1991). Empathy can be expressed in several ways, including cognitive, affective, and motor.
10.0K