"希望是强大的":对生活在结构脆弱和物质使用障碍患者的严重疾病对话进行定性调查
Emma Schon1, Ruth MacRedmond2, Rebecca Rechlin3
1Division of Critical Care, Department of Medicine, University of British Columbia, Vancouver, BC, Canada. emma.schon@vch.ca.
具有结构性弱点和物质使用障碍的患者需要量身定制的严重疾病对话. 解决未满足的需求和过去的负面经验对于改善终身护理和尊重患者价值观至关重要.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 健康 公平 卫生 公平
- 定性研究是指质量研究.
背景情况:
- 严重疾病对话对于在疾病进展期间将护理与患者的愿望相协调至关重要.
- 具有结构性弱点和物质使用障碍的患者面临障碍,导致不理想的生命终结体验.
- 了解这一群体的独特需求对于改善严重疾病护理至关重要.
研究的目的:
- 在严重疾病对话中探索结构脆弱和物质使用障碍患者的需求和偏好.
- 为与边缘化患者群体进行这些对话提供最佳实践建议.
- 提高急性医院环境中的护理和沟通质量.
主要方法:
- 使用了定性解释性描述方法.
- 与16名住院参与者进行了半结构面试.
- 专题分析被用来反复地分析采访数据.
主要成果:
- 参与者在严重疾病讨论期间优先考虑未满足的基本需求.
- 以前的负面医疗体验导致了与提供者保持谨慎的沟通.
- 希望被确定为一个关键因素,以及针对医疗保健提供者的特定患者建议.
结论:
- 调查结果强调了与弱势群体进行严重疾病对话的关键考虑因素.
- 实施这些建议可以改善对话质量和患者护理.
- 需要量身定制的方法来满足结构脆弱和物质使用障碍患者的独特需求.
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