发育协调障碍:"它不在人们的雷达上...他们不感兴趣"
Rebecca Murray1, Cara E Staniforth1,2, Amira Shawak1
1Department of Psychology, University of Bradford, Bradford, United Kingdom.
PloS one
|November 18, 2025
概括
发育协调障碍 (DCD) 对儿童和家庭产生重大影响,突出了对医疗保健和教育更好地提高认识和支持的关键需求. 父母往往因为缺乏理解和资源而成为倡导者.
科学领域:
- 神经发育障碍 神经发育障碍
- 儿童心理学 儿童心理学
- 家庭研究 家庭研究
背景情况:
- 发育协调障碍 (DCD) 影响5-6%的儿童,但其在整个寿命和生活领域的影响未得到充分研究.
- 现有的研究主要集中在运动技能缺陷上,忽视了更广泛的生活后果.
研究的目的:
- 探索父母抚养被诊断患有DCD的孩子的实践经验.
- 了解DDC对儿童和家庭的多方面的影响.
- 为了识别知识,支持和对患有DCD的个体的护理方面的差距.
主要方法:
- 进行了10次在线半结构面试,与患有DCD的孩子的父母进行了面试.
- 在国家和国际范围内招募参与者,以探索文化差异.
- 利用感应性主题分析来解释关于初级保健,教育,社会和福祉经验的访谈数据.
主要成果:
- 关键主题包括DDC对家庭的深刻影响,普遍缺乏意识,以及支持系统不足.
- 父母报告说,他们感到被抛弃,被迫成为孩子的倡导者.
- 诊断过程及其影响是父母体验的重要因素.
结论:
- 患有DCD的儿童及其家人在获得必要的帮助和支持方面遇到重大障碍.
- 在医疗保健,教育和社区部门之间提供综合支持至关重要.
- 开发基于证据的培训,以家长的经验为基础,对于有效的跨部门护理至关重要.
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