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实施以用户为中心的设计,为患有癌症的青少年男性开发基于Web的精子储存决策工具.
Megan M Griffith1, Emre Sezgin1,2, Tanvi Karkare1
1The Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, Ohio, USA.
Journal of adolescent and young adult oncology
|November 20, 2025
概括
一个新的工具,以家庭为中心的青少年精子储存价值澄清工具 (FAST),是为患有癌症的青少年男性开发的,以协助生育决策. 这种以用户为中心的工具被发现很容易导航,对家庭来说很有用.
科学领域:
- 在瘤学瘤学.
- 生殖医学 生殖医学
- 青少年健康 青少年健康
背景情况:
- 男性儿童癌症幸存者经常因癌症治疗而面临生育能力受损.
- 幸存者对错过的精子储存机会感到遗憾是很常见的.
- 对于患有癌症的青少年男性来说,缺乏决策工具加剧了这个问题.
研究的目的:
- 开发,测试和调整以家庭为中心的青少年精子储存价值澄清工具 (FAST).
- 利用一种代的,以用户为中心的设计,涉及患有癌症的男性青少年及其照顾者.
- 收集临床医生和社区合作伙伴的反,以改进工具.
主要方法:
- 十个家庭 (9名青少年,16名护理人员) 参与.
- 参与者完成了半结构面试FAST和系统可用性量表 (SUS).
- 对于调整,使用了反,并使用"调整和修改报告框架-扩展"进行了记录.
主要成果:
- 在用户反的基础上,FAST进行了43次调整.
- FAST的中位完成时间为5分37秒.
- 快速实现了高平均SUS得分84.60,表明出色的可用性.
结论:
- 快速成功开发,可用性测试,并适应到一个基于Web的格式.
- 青少年和护理人员发现FAST易于导航和有用.
- 像FAST这样的基于Web的工具可以增强精子储存决策,并提高年轻男性癌症患者对生育咨询结果的满意度.
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