用他们自己的话:通过叙事医学创造联系
Sneha Mantri1,2,3, Lissa Kapust4, Jillian Goober4
1Department of Neurology, Duke University School of Medicine, Durham, NC, USA.
Journal of patient experience
|November 21, 2025
概括
帕金森病患者通过指导55个单词的日记活动改善了福祉和沟通. 这种叙事医学方法增强了患者与临床医生的关系和共同经验.
科学领域:
- 神经学 神经学
- 叙事医学是一种叙事医学.
- 患者沟通 患者沟通
背景情况:
- 患有帕金森病 (PwP) 的患者在临床检查期间经常觉得没有被听到.
- 临床医生面临的效率压力阻碍了以患者为中心的沟通.
- 需要简洁的患者讲故事方法.
研究的目的:
- 为了介绍和评估一个指导的简短形式的日记活动,55个字的故事.
- 评估这项活动对普华永道的福利和沟通的影响.
- 为了确定在线日记计划的可行性和可享受性.
主要方法:
- 10-13个PwP的三个队伍参加了每周四次的虚拟会议.
- 一位经过叙事医学和运动障碍学培训的辅导员领导了会议.
- 参与者参与了一项指导55个字的日记活动.
主要成果:
- 88.6%的参与者报告说,他们改善了人际关系,沟通,目标清晰或社区.
- 91.4%的人打算与他人分享他们55个字的故事.
- 在线日记活动是可行的,愉快的,并改善了普华永道的福祉.
结论:
- 这篇55个字的故事是普华永道分享经验的有效工具.
- 这种叙事医学模型增强了患者与临床医生的沟通和患者的幸福感.
- 该计划可以适应其他机构和慢性疾病.
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