膀外缩患者及其护理人员的心理和性结果
Ayten Ceren Bakır1, Hacı Murat Emül2, Mehmet Eliçevik3
1Marmara University, Department of Pediatric Surgery, Istanbul, Turkey.
Journal of pediatric surgery
|November 21, 2025
概括
膀外缩患者报告显著的心理困扰,包括抑郁和焦虑,以及性健康挑战. 照顾者也面临着相当大的负担,这强调了需要全面支持的需要.
科学领域:
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 心理学 心理学 心理学
- 康复医学 康复医学 康复医学
背景情况:
- 膀外缩是一种罕见的先天性异常,具有显著的长期身体和心理社会后果.
- 现有的研究对膀外缩症患者及其护理人员的心理和性健康结果提供了有限的见解.
研究的目的:
- 评估成年患者的心理和性福利治疗膀外缩.
- 评估膀外缩症患者的照顾者所经历的负担.
主要方法:
- 对27名患者 (12-33岁) 的回顾性评估,在膀外缩闭和增大后进行.
- 使用了经过验证的心理测量工具:ASES,BDI,MOCI,TEMPS,STAI和Zarit护理人员负担面试.
- 进行了标准的统计分析.
主要成果:
- 患者经常出现抑郁症状 (BDI平均12.6) 和中度焦虑 (STAI得分).
- 性福利显示满意度降低,与抑郁症状和特征焦虑相关.
- 护理人员报告说,他们的负担中等至高 (Zarit平均分数为36.4).
结论:
- 膀外缩症患者面临相当大的心理和性健康问题.
- 照顾者面临着巨大的负担,需要综合心理社会支持.
- 针对医疗和心理社会需求的整体长期护理对这一群体至关重要.
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