对囊性纤维化进行认知行为疼痛干预的以患者为中心的开发:步伐CF计划
Amanda S Bruce1, Tara M D Mullen2, Megan Behrman1
1University of Kansas Medical Center, Kansas City, Kansas, United States.
Pain medicine (Malden, Mass.)
|November 22, 2025
概括
患有囊性纤维化 (CF) 和慢性疼痛的成人需要量身定制的行为干预措施. 来自CF患者的反指导了PACE CF计划的开发,整合了认知行为和心身方法,以更好地管理疼痛.
科学领域:
- 疼痛管理 疼痛管理
- 行为健康 行为健康
- 囊性纤维化研究 囊性纤维化研究
背景情况:
- 大多数患有囊性纤维化 (CF) 的成年人经历慢性疼痛,严重影响他们的生活质量.
- 目前CF基金会的指导方针建议采用多模式疼痛管理策略,包括非药物行为干预措施.
- 现有的行为干预措施并不是专门为患有CF和慢性疼痛的成年人设计的.
研究的目的:
- 开发一种新的认知行为和心身干预,专门针对CF和慢性疼痛成年人的独特需求,偏好和经验.
- 解决CF患者慢性疼痛管理专业行为干预措施的缺口.
主要方法:
- 对14名被诊断患有CF和经历慢性疼痛的成年人进行了个别定性访谈.
- 采用混合感应-演主题分析来确定与患者需求和干预开发偏好相关的关键主题.
主要成果:
- 确定了关键主题,包括解决心理健康问题的重要性,需要个性化的计划,以及偏好由CF护理团队提供服务.
- 突出了CF特异性内容修改的必要性,并探索了患者参与的障碍和促进者.
- 患者的反直接影响了干预的结构和内容.
结论:
- 患有CF的成年人为创建慢性疼痛的认知行为和心身干预提供了关键的投入.
- 基于这些反,疼痛认知,应对和赋权 (PACE CF) 计划被开发出来.
- PACE CF 旨在整合到CF中心的常规护理中,以改善疼痛管理结果.
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