在瘤学中共同设计对等支持:关于开发Parole OncO法国模型的参与性研究
Yaël Busnel1, Ibtissem Ben Dridi2, Mathilde Lochmann3
1Research on Healthcare Performance (RESHAPE), INSERM U1290, University Calude Bernard Lyon1, Lyon F-69000, France.
伴随患者 (AP) 为癌症患者提供了至关重要的支持. 这项研究共同设计了法国瘤学同行支持的可适应的PROOF模型,确定了可持续融入护理团队的实施策略.
科学领域:
- 在瘤学瘤学.
- 实施科学 实施科学
- 患者支持 患者支持
背景情况:
- 像伴随患者 (AP) 提供的同行支持干预措施对癌症患者至关重要,但在法国瘤学中缺乏一致的实施.
- 现有的模型往往无法有效地整合到临床实践中,这凸显了对上下文敏感,共同设计的解决方案的需求.
研究的目的:
- 共同设计一项针对法国瘤科单位量身定制的点对点支持干预措施.
- 确定使或阻碍这些计划实施的机构因素.
- 通过使用既定框架开发实际实施途径.
主要方法:
- 一个多站点参与性研究,涉及8名患者合作伙伴作为9个瘤病房的共同研究人员.
- 与60个利益相关者进行结构化联合设计研讨会,包括AP,医疗保健专业人员和管理人员.
- 使用实施研究综合框架 (CFIR) 进行主题分析,并通过TIDieR.R.进行干预描述.
主要成果:
- 共同构建Parole OncO France (PROOF) 同行支持模型,可适应当地结构.
- 定义了AP的角色,能力和培训需求,以及确定了支持者 (例如,领导力支持) 和障碍 (例如,身体限制).
- 开发定制的实施途径,用于安装,监督和整合到护理过程中.
结论:
- 共同设计基于生活经验和当地背景的点对点支持干预措施在瘤学中是可行的和有价值的.
- 该PROOF模型提供了一个可复制的框架,用于将AP整合到癌症治疗中,为可持续的计划实施提供指导.
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