与诊断延迟和系统性硬化症专业咨询模式相关的因素:一个横截面研究
Yesim Erez1, Gökce Kenar Artın2, Handan Yarkan Tugsal2
1Division of Rheumatology, Department of Internal Medicine, Dokuz Eylul University School of Medicine, Dokuz Eylul Universitesi Sağlık Yerleşkesi, Balçova, 35340, İzmir, Turkey. erezyesim@gmail.com.
Rheumatology international
|November 24, 2025
概括
诊断系统性硬化症 (SSc) 通常需要一年以上的时间,需要多次去看医生. 提高医生意识和简化类风湿病的转诊可以加快SSc患者的诊断.
科学领域:
- 类风湿病学 类风湿病学
- 自免疫性疾病 自免疫性疾病
- 临床诊断 临床诊断 临床诊断
背景情况:
- 系统性硬化症 (SSc) 诊断是具有挑战性的,因为它具有非特异性症状,并与其他自身免疫性疾病重叠.
- 早期发现SSc对于有效的管理和改善患者的治疗结果至关重要.
- 目前SSc的诊断途径通常涉及显著的延迟.
研究的目的:
- 调查导致系统性硬化症诊断延迟的因素.
- 分析SSc诊断前咨询的医生专业的数量和类型.
- 识别与SSc诊断时间相关的患者和转诊特征.
主要方法:
- 一项涉及135名系统性硬化症患者的横截面研究,在一所大学的风湿病诊所进行.
- 数据收集包括人口统计,临床特征和通过采访咨询医生.
- 统计分析确定了与诊断前咨询次数相关的因素.
主要成果:
- 从雷诺现象发作到SSc诊断的中位时间为36个月,从第一个非雷诺症状发作到第一个非雷诺症状为11个月.
- 与分散的SSc患者相比,有限的SSc患者经历了较长的诊断延迟 (44个月与20个月).
- 患者在诊断前咨询了平均3名医生 (范围为1-9);只有6.7%的患者在第一次访问时被诊断出来.
结论:
- 系统性硬化症的诊断经常延迟,需要多次医生咨询.
- 高等教育水平和熟悉的医疗保健专业人员的推与较少的咨询有关.
- 提高医生意识和及时的类风湿病转诊对于减少SSc诊断延迟至关重要.
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