一个现象学研究青少年的生活经历与父母被诊断出患有多发性硬化症的青少年
Yeşim Yurdakul1, Sümeyye Koç2, Utku Beyazit1
1Akdeniz University, Antalya, Türkiye.
Journal of health psychology
|November 25, 2025
概括
患有多发性硬化症 (MS) 的父母的青少年经历了显著的情绪压力,改变了家庭动态和学术挑战. 这项研究突出了他们独特的心理社会斗争和应对机制.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 多发性硬化症 (MS) 是一种影响家庭的慢性神经疾病.
- 人们越来越认识到,多发性硬化症父母对孩子的心理社会影响.
- 对青少年患有父母MS的经验的研究是有限的.
研究的目的:
- 探索土耳其青少年 (14-18岁) 与被诊断为MS的父母生活的经历.
- 了解父母MS对青少年心理社会福祉的主观影响.
- 确定青少年关于父母MS的叙述中的关键主题.
主要方法:
- 描述性的现象设计. 描述性的现象设计.
- 与十名青少年进行半结构面试.
- 使用乔治的现象学方法分析数据.
主要成果:
- 出现了四个主要主题:对诊断的情绪反应,家庭关系的变化,对日常生活的影响以及学术挑战.
- 青少年报告说情绪紧张,责任增加,社会限制和学术困难.
- 隐喻被用来表达复杂的情绪和不断变化的家庭角色.
结论:
- 父母MS显著影响青少年的情感,社会和学术生活.
- 了解这些经验对于开发有针对性的支持系统至关重要.
- 需要进一步的研究来解决应对父母慢性疾病的青少年的具体需求.
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