患者和家长对性发展障碍的看法术语:试点研究
Stephanie Sharp1,2, Linford Williams1,3, Beverly Yashar1
1Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA.
Archives of sexual behavior
|November 25, 2025
概括
性发育障碍 (DSD) 的青少年和父母比诊断术语更积极地看待自己. 这项研究探讨了DSD和跨性别术语的个人含义.
科学领域:
- 医疗术语的医学术语.
- 患者为中心的护理
- 诊断的心理影响.
背景情况:
- 性发育障碍 (DSD) 的诊断术语一直存在争议.
- 对于利益相关者之间的沟通,就命名法达成协议至关重要.
- 意见分歧可能会导致混和术语的扩散.
研究的目的:
- 在青少年患者和他们的父母中评估DSD诊断术语的内涵意义.
- 为了比较特定诊断的个人含义,总体术语 (DSD,跨性别) 和自我/儿童身份.
- 探索新的策略来评估医疗术语的个人含义.
主要方法:
- 试点研究涉及27名患有DSD的青少年/年轻人和22名父母/照顾者.
- 来自三个儿科医疗中心的招聘.
- 利用测量自尊的语义评分尺度来评估内涵意义.
主要成果:
- 青少年和家长对自己/他们的孩子的评价比他们的具体诊断或总体术语 (DSD,跨性别) 更为积极.
- 针对特定诊断和总体术语的评级通常是中立的,并没有显著差异.
- 无论是青少年还是家长,都没有将个人与他们的诊断等同起来.
结论:
- 对DSD的诊断和术语的个人含义与自我认同有所区别.
- 患有DSD的个人及其家人比用来描述他们的病情的术语更积极地看待自己.
- 这项研究提供了一种新的方法来了解医疗命名的个人影响.
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