长期健康状况的育儿:经验,支持需求和服务提供偏好
Dearbhla Anne Quirke1, Lillian Kathy Sheehan1, Yvonne Codd2
1University College Cork, Ireland.
OTJR : occupation, participation and health
|November 26, 2025
概括
患有持久健康状况的父母在育儿任务中面临重大挑战,尤其是身体上的挑战. 他们往往缺乏足够的支持服务,这凸显了对综合系统的迫切需要,以帮助他们的育儿角色.
科学领域:
- 卫生科学 卫生科学 卫生科学
- 社会学 社会学 社会学
- 育儿研究 育儿研究
背景情况:
- 持久性健康状况显著影响个人的生活,但它们对育儿角色的影响仍未得到充分研究.
- 了解患有慢性疾病的父母的经验和支持需求对于开发有效干预措施至关重要.
研究的目的:
- 探索爱尔兰长期健康状况的父母的生活经历.
- 确定他们对育儿角色的支持需求和偏好.
- 评估慢性疾病对育儿能力的影响.
主要方法:
- 使用认知采访 (n=6) 开发和改进了一种定制的电子调查.
- 使用描述性统计数据和组比较分析了定量数据.
- 从开放式回复中获得的定性数据使用解释性内容分析进行了分析.
主要成果:
- 281名患有持久健康状况的家长完成了调查.
- 参与者报告说,在家长任务中遇到很大的困难,特别是那些需要体力劳动的任务.
- 报告中常见的是对正式服务的有限访问和未得到满足的需求,导致对现有支持的不满.
结论:
- 持久的健康状况大大影响了育儿能力和参与育儿角色.
- 迫切需要为患有慢性疾病的父母量身定制的综合支持系统.
- 加强支持是必要的,以使这些父母能够有效地履行他们的育儿职业和角色.
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