改变各国的护理:来自帕金森病综合护理网络研究 (iCARE-PD) 的教训
Deepa Dash1, Margherita Fabbri2, Joseph Saade1
1Parkinson's Disease and Movement Disorders Clinic, Division of Neurology, Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Movement disorders : official journal of the Movement Disorder Society
|November 27, 2025
概括
帕金森病 (PD) 综合护理计划 (iCARE-PD) 显示成功的跨国实施和高完成率. 这种新型模型改善了PD患者在各种医疗机构的感知护理质量.
科学领域:
- 神经学 神经学
- 医疗保健管理的管理
- 患者护理模式的模型
背景情况:
- 对帕金森病 (PD) 的最佳护理提供仍然不清楚,需要敏捷和可转移的护理模型.
- 多样化的医疗保健系统需要可适应的解决方案,以满足PD患者不断变化的需求.
研究的目的:
- 评估PD的创新综合护理方案iCARE-PD的跨国实施和影响.
- 评估iCARE-PD计划的可行性,过程结果,可接受性和与健康有关的结果.
主要方法:
- 在六个国家PD三级中心进行了一项具有前后设计的跨国前性观察研究.
- 这项为期四个月的综合护理计划重点是个性化护理计划,增强的系统导航和自我护理支持.
- 注册率和计划完成率是主要结果,跨国可行性和与健康有关的结果是次要措施.
主要成果:
- 该iCARE-PD计划表现出高跨国可行性,中位点入学率为69.6%,计划完成率为96.5%.
- 参与者在慢性疾病护理+ (PACIC+) 总得分的患者评估中显示出显著的积极变化 (0.48,P < 0.0001).
- "复杂护理需求"组在MDS-UPDRS Part II + III nontremor (4.03,P = 0.0018) 中经历了积极的得分变化.
结论:
- 在多样化的社会,文化和医疗保健系统中成功实施了iCARE-PD模型,实现了高完成率.
- 该计划改善了帕金森病不同阶段的个体对护理质量的感知.
- 研究结果表明,这种以社区为中心,务实的综合护理模式对PD和潜在的其他慢性运动障碍的可转移性和影响.
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