针对转移性癌症妇女的在线同行支持计划:前后评估
Sophia Mählmann1, Hedy Kerek-Bodden2, Joachim Weis3
1Comprehensive Cancer Center Freiburg, Medical Center University of Freiburg, Hugstetter Str. 49, 79106, Freiburg, Germany.
概括
这项为患有转移性癌症的女性提供同行指导的在线支持计划,通过促进共享经验和减少孤立感,显著减少了心理社会痛苦. 该计划达到了预期,并缓解了人们对面对他人的困难旅程的担忧.
科学领域:
- 在瘤学瘤学.
- 心理社会支持 心理社会支持
- 数字健康数字健康
背景情况:
- 转移性癌症的诊断给女性带来了重大的心理,身体和社会负担.
- 受影响的女性经常报告心理社会支持不足,突出了严重的未满足需求.
- 妇女自助组织癌症 (Frauenselbsthilfe Krebs e.V. 妇女自助组织. FSH) 开发了一个创新的同行支持计划.
研究的目的:
- 系统地评估一项针对转移性癌症妇女的创新在线同行支持计划.
- 评估该计划对心理社会困境和生活质量的影响.
- 了解与会者的期望,担忧,好处和与计划相关的困难.
主要方法:
- 使用了前后非随机化研究设计.
- 参与者 (在基线时n=97,随访时n=44) 评估了该计划.
- 心理社会结果,包括痛苦和生活质量,在基线 (T0) 和6个月后续 (T1) 测量.
主要成果:
- 在线同行支持计划符合参与者的期望,并被评为有助于分享经验和减少孤独感.
- 最初对面对别人的困难命运的担忧在参与后逐渐减弱.
- 观察到心理社会压力的显著减少 (t(43) =3.41,p=.001),而抑郁和焦虑水平保持不变.
结论:
- 在线同行支持计划对患有转移性癌症的妇女产生了巨大的益处,特别是在减少心理社会压力方面.
- 该计划有效地促进了同行联系和经验分享.
- 建议通过对照研究进行进一步的调查,以确认该计划的有效性.
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