父母对照顾患有瘤疾病的孩子的观点:一种定性研究
Ambreen Navroz Ali Salyani1, Salma Rattani1, Asif Khowaja2
1Aga Khan University School of Nursing and Midwifery.
International journal of palliative nursing
|November 27, 2025
概括
在低收入和中等收入国家 (LMICs) 患有癌症儿童的父母经历了严重的心理痛苦和有限的支持. 解决这些挑战对于改善儿童癌症期间的家庭福祉至关重要.
科学领域:
- 心理学 心理学 心理学
- 在瘤学瘤学.
- 全球健康 全球健康
背景情况:
- 儿童癌症显著影响父母的情感和心理福祉,往往被忽视.
- 低收入和中等收入国家 (LMICs) 的家长面临着由于经济限制和有限的心理社会支持而加剧的挑战.
- 有限的研究存在于LMICs导航儿童癌症的父母的心理观点.
研究的目的:
- 在LMIC中调查癌症儿童的父母所经历的心理和情感困难.
- 突出一些问题,如发展中国家普遍存在的心理社会支持的限制.
主要方法:
- 描述性的探索性研究设计.
- 来自巴基斯坦卡拉奇一家三级医院的12名参与者的有目的抽样.
- 通过深入的半结构面试收集的数据,并使用内容分析进行分析.
主要成果:
- 出现了四个主要主题:父母的反应/感受,应对策略/支持系统,挑战和父母的观点.
- 在LMIC中的家长经常遇到额外的障碍,包括财务压力.
- 缺乏心理支持是家长发现的一个重大挑战.
结论:
- 了解LMIC父母的经验对于提供必要的支持至关重要.
- 儿童癌症影响家庭的心理和情感支持必须在LMIC中优先考虑.
- 在LMICs的政策制定者和医疗保健从业者应该专注于加强这些家庭的支持系统.
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