基于经验的共同设计,明智地开发一个工具箱,以帮助优化从儿童宿舍护理过渡期间的初级保健支持:HOPSCOTCH研究协议
Emma Chapman1, Sarah Mitchell2, Lorna Katharine Fraser3
1Academic Unit of Palliative Care, University of Leeds, Leeds, UK e.j.chapman@leeds.ac.uk.
BMJ open
|November 27, 2025
概括
该HOPSCOTCH研究开发了一个工具箱,以改善从儿童宿舍护理过渡期间,为患有生命限制疾病的年轻人提供初级护理. 这项研究使用联合设计方法来增强对这些脆弱患者的支持和沟通.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 儿科医疗保健 儿科医疗保健
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患有生命限制疾病 (LLC) 的年轻人需要在儿科住院和初级保健服务之间进行无过渡.
- 在这种转变期间,当前的初级保健支持往往不够理想,需要有针对性的干预措施.
- 该HOPSCOTCH研究解决了这一差距,专注于加强初级保健参与.
研究的目的:
- 开发一个工具箱,以促进初级保健服务的参与,在LLC的年轻人的照顾.
- 具体解决从儿童宿舍护理到更广泛的社区和初级保健环境的过渡期.
- 改善在关键护理过渡期间为LLC年轻人提供护理的连续性和质量.
主要方法:
- 利用基于经验的共同设计 (EBCD) 方法,包括与年轻人,家庭和医疗保健专业人员 (HCP) 进行个人访谈.
- 从采访摘录制作"催化剂电影",以突出重点过渡经历.
- 根据英国医学研究理事会的复杂干预框架和行为变化轮的指导,开展特定角色的研讨会和文档分析,以指导工具箱的开发.
主要成果:
- 该研究目前处于开发阶段,研究方法侧重于共同设计和干预开发.
- 工具箱的关键问题正在通过参与年轻人,家庭和医疗保健人员的共同研讨会来优先考虑.
- 文档分析将为现有过渡支持资源提供背景.
结论:
- 该HOPSCOTCH研究旨在创建一个实用的资源 (工具箱),以改善从临终关怀过渡的LLC年轻人的初级保健支持.
- 共同设计方法确保开发的工具是相关的,并响应年轻人,家庭和医疗保健提供者的需求.
- 有效的传播策略将确保工具箱到达关键利益相关者,增强护理提供和知识转移.
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