患者和医疗保健专业人员对实施多发性骨髓瘤共享决策的看法:一项跨国定性研究
Elise Schoefs1, Charlotte Verbeke2, Jolien Broekmans2
1Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium. elise.schoefs@kuleuven.be.
BMC medical informatics and decision making
|November 28, 2025
概括
在多发性骨髓瘤 (MM) 护理中,共享决策 (SDM) 应用不一致,患者往往没有征求偏好. 加强护士和患者组织的角色可以改善SDM的实施.
科学领域:
- 血液学 血液学 血液学
- 在瘤学瘤学.
- 患者护理 患者护理
背景情况:
- 共享决策 (SDM) 在瘤学中至关重要,但在多发性骨髓瘤 (MM) 中未得到充分研究.
- 调查SDM实施,利益相关者的角色以及MM护理中的障碍是必不可少的.
研究的目的:
- 在多发性骨髓瘤 (MM) 临床实践中研究SDM的实施.
- 评估在MM SDM过程中除了血液学家之外的利益相关者的角色.
- 在MM护理中识别SDM实施的障碍和解决方案.
主要方法:
- 使用半结构面试进行的定性研究.
- 参与者包括39名患者,15名血液学家和5名血液学护士,来自欧洲和以色列.
- 用专题分析来分析采访数据.
主要成果:
- 患者希望参与,但报告不同的SDM经验;偏好和信息需求往往被忽视.
- 关于"不治疗"选择和寻求患者信息的偏好方面的讨论显著缺乏.
- 血液学护士,多学科团队和患者组织发挥着至关重要的作用;障碍包括时间限制和缺乏以患者为中心的信息.
结论:
- SDM在MM护理中部分实施,有很大的改进空间.
- 建议扩大血液学护士和多学科团队的角色.
- 通过组织赋予患者权力和开发患者决策辅助工具 (PtDAs) 可以增强SDM.
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