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基于人口的痴呆症登记处的范围审查:推进研究,护理和政策
Haley Garland1, Mireille Jacobson2, Shengjia Xu1
1Leonard D. Schaeffer Institute for Public Policy and Government Service, University of Southern California, Los Angeles, California, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|November 28, 2025
概括
对阿尔茨海默病和相关痴呆症 (ADRD) 的基于人口的登记是有限但至关重要的. 这次审查确定了21个登记处,突出了改善痴呆症护理和研究所必需的数据和地理覆盖的差距.
科学领域:
- 神经科学是一个神经科学.
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
背景情况:
- 对阿尔茨海默病和相关痴呆症 (ADRD) 的基于人口的登记册对于公共卫生,研究和患者护理至关重要.
- 现有注册表的范围和覆盖范围有限,阻碍了对ADRD的全面理解和管理.
- 痴呆症的蔓延越来越大,需要强大的数据基础设施来进行有效的干预.
研究的目的:
- 开展经济合作与发展组织 (OECD) 国家的基于人口的痴呆症登记册的范围审查.
- 描述已识别的注册表的结构和范围,并评估关键主题.
- 制定建议,以加强未来的痴呆症注册表的发展.
主要方法:
- 对痴呆症注册研究进行了全面的范围审查,包括到2023年12月的出版物.
- 从235个出版物中提取数据,以识别和分析经合组织国家的基于人口的痴呆病名册.
- 基于其结构,范围,数据元素和地理覆盖范围,对注册表进行了表征.
主要成果:
- 在经合组织国家中确定了21个基于人口的痴呆症登记处.
- 这些注册表提供了有价值的纵向数据,改善了病例识别,并为研究和政策标准化了结果.
- 在数据覆盖范围中,关于医疗保健利用,护理和地理代表性的数据覆盖中发现了显著的差距.
结论:
- 基于人口的痴呆症注册表对于生成现实世界的证据至关重要,以指导痴呆症护理,政策和结果的改进.
- 解决当前注册表中数据和覆盖范围的局限性至关重要,以充分支持研究和公共卫生工作.
- 在痴呆症诊断和治疗进展的时代,增强的注册表至关重要,以有效地管理日益增长的痴呆症负担.
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