轻度多发性硬化症的挑战塑造了工作经验,影响了自我概念,并且尽管披露了信息,但经常被轻视
Maria Grytvik Hartvedt1, Britt Normann1,2, Marianne Sivertsen1,2
1Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway.
Frontiers in rehabilitation sciences
|November 28, 2025
概括
患有多发性硬化症 (MS) 的人经常隐藏工作挑战,影响工作保留. 在保持自我概念的同时解决这些问题是持续就业的关键.
科学领域:
- 神经科学是一个神经科学.
- 社会学 社会学 社会学
- 职业健康 职业健康 职业健康
背景情况:
- 多发性硬化症 (MS) 通常会导致就业挑战,即使是轻度残疾.
- 多发性硬化症患者就业人员在工作中遇到的工作挑战的经验未得到充分研究.
研究的目的:
- 探讨那些患有轻度至中度多发性多发性硬化症的雇员所面临的工作挑战.
- 确定使MS患者获得持续就业的因素.
主要方法:
- 使用深入访谈对26名MS患者的就业人员进行定性研究.
- 分析采用了系统的文本凝聚,以戈夫曼的理论为指导.
主要成果:
- 出现了三个主题:未表达的工作挑战,累积症状影响和工作中的自我感知.
- 即使在披露后,关于挑战的有限沟通仍然存在;症状相互作用降低了工作能力.
- 对任务有能力感受与持续的就业有关.
结论:
- 患有多发性硬化症的人可能会淡化工作挑战,以保持自我概念和社会角色.
- 承认和解决轻微的MS症状和工作挑战,同时保持自我概念和工作场所的接受,可以支持工作保留.
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