以患者为导向的互联网信息质量,观察和等待直肠癌
Justin N F Lam1, Geoffrey T Ho1, Trevor M Yeung1
1Division of Colorectal Surgery, Department of Surgery, The Chinese University of Hong Kong, Prince of Wales Hospital, Hong Kong, Hong Kong SAR.
关于在线资源 关于在线资源
科学领域:
- 在瘤学瘤学.
- 手术瘤学手术瘤学
- 患者教育 患者教育
背景情况:
- 对于直肠癌而言,全腹腔切除术 (TSE) 具有显著的发病率.
- 在新辅助疗法后的"观察和等待"方法是手术的替代方案.
- 评估"观察和等待"的在线信息质量对于患者的理解至关重要.
研究的目的:
- 评估在线患者资源的可用性,以观察和等待直肠癌的方法.
- 使用DISCERN工具评估这些在线资源的质量.
- 识别患者信息中关于直肠癌非手术治疗的空白.
主要方法:
- 在谷歌上使用特定的以患者为中心的关键词搜索了"观察和等待"和"非手术管理"的直肠癌.
- 对每个搜索查询的前50个结果进行评估,以确定相关性和面向患者的内容.
- 利用DISCERN仪器评估14个选定的以患者为导向的网站的质量.
主要成果:
- 在100个审查的网站中,只有14个提供了专门的"观察和等待"患者信息.
- 大多数网站详细介绍了好处,但遗漏了不确定性或风险 (71.4%).
- 只有两个 (14.3%) 网站符合"高质量"的标准,根据DISCERN.
结论:
- 在直肠癌中使用"观察和等待"方法的在线患者资源很少,而且质量通常很低.
- 需要为考虑这种非手术选择的患者确定和推高质量的在线资源.
- 提高患者信息的质量和可访问性对于在直肠癌治疗中做出明智决策至关重要.
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