患者的声音在亚托皮性湿疹指南:我们如何使其成为标准实践?
Bernd Arents1, Korey Capozza2, Ncoza C Dlova3
1Dutch Association for People with Atopic Dermatitis, Nijkerk, The Netherlands.
The patient
|November 28, 2025
概括
患者和护理人员的参与对于制定更好的亚托皮性湿疹指南至关重要. 解决特定的需求和障碍,确保患者的观点得到整合,从而产生更合适,更有效的护理建议.
科学领域:
- 皮肤病学 皮肤病学
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
背景情况:
- 建议患者和护理人员参与临床指导方针的制定,但在阿托皮性湿疹指导方针中代表性不足.
- 现有的关于患者参与的一般指南需要根据亚托皮性湿疹的具体情况进行调整.
研究的目的:
- 为了确定可持续的患者和护理人员参与亚托皮性湿疹指导方针开发的具体因素.
- 提出一个框架,将患者的观点纳入标准指南开发实践中.
主要方法:
- 对患者参与指南制定的一般原则的审查.
- 对亚托皮性湿疹的具体考虑因素的分析,包括疾病异质性和心理社会影响.
- 识别患者参与的障碍和促进者.
主要成果:
- 有效参与需要选择多样化的患者和护理人员代表.
- 解决心理社会影响和提供支持对于平等伙伴关系至关重要.
- 患者的优先事项可能与医疗保健专业人员的优先事项不同,因此需要包括他们.
结论:
- 可持续的患者参与阿托皮性湿疹指南的制定需要量身定制的策略.
- 克服资源和政策障碍是确保文化适当指导方针的关键.
- 提出了一个框架,以标准化患者和护理人员参与指南制定.
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