相关实验视频
Updated: Jan 10, 2026

Assessment and Communication for People with Disorders of Consciousness
Published on: August 1, 2017
在亲属中讲述意识障碍患者的希望
Hanne Bess Boelsbjerg1, Niklas Blond2, Mette Terp Høybye3
1Interacting Minds Centre, Department of Clinical Medicine, Aarhus University, Denmark; Department of Anthropology, School of Culture and Society, ARTS, Aarhus University, Denmark.
患有严重获得性脑损伤 (sABI) 患者的亲属使用希望作为一种关系实践来应对不确定性. 他们的讲故事和联系维持了超越医学预后的关系.
科学领域:
- 神经科学是一个神经科学.
- 社会学 社会学 社会学
- 心理学 心理学 心理学
背景情况:
- 患有严重获得性脑损伤 (sABI) 的患者为家庭带来复杂的医疗和情感挑战.
- 家庭成员经常平衡预后现实与患者康复的愿望.
研究的目的:
- 探索亲属如何在严重获得性脑损伤后的医疗不确定性中创造和管理希望.
- 分析希望作为一种关系和时间实践,将过去,现在和未来联系在一起.
主要方法:
- 在丹麦神经康复单位进行的民族学实地研究.
- 分析灵感来自于宫崎的希望作为一种方法的概念.
- 检查亲属的叙述和与医疗保健专业人员的互动.
主要成果:
- 希望作为一个动态的,主体间的过程,使亲属能够与患者保持联系.
- 亲属的讲故事传达关系知识,可能会影响临床评估.
- 亲属可能会抵制"现实的希望"框架,维持希望超出医疗预测.
结论:
- 希望是一种跨主观的,以未来为导向的实践,对于亲属来说至关重要,它可以帮助他们应对失去并保持关系.
- 了解希望作为一种实践,为神经康复中的家庭弹性提供了洞察力.
- 这项研究强调了生物医学观点和家庭希望之间的相互作用.
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