理想的时间和被认为是中国癌症儿童息护理整合障碍的理想时机
Wang Ruixin1, Zhou Xuan1, Cai Siyu2
1Hematology Center (W.R., Z.X.), National Center for Children's Health, Key Laboratory of Major Diseases in Children, National Key Clinical Discipline of Pediatric Hematology, National Key Discipline of Pediatrics (Capital Medical University), Ministry of Education, Beijing Children's Hospital, Capital Medical University, Beijing, 100045 China.
患有癌症的儿童的儿科息护理 (PPC) 经常被推迟到生命的终点,尽管诊断的理想时机. 在中国,有限的专业访问和家庭服务是关键障碍.
科学领域:
- 儿科瘤学 儿科瘤学
- 抚慰性护理是一种缓解性护理.
- 医疗保健系统研究 医疗保健系统研究
背景情况:
- 儿科息治疗 (PPC) 改善了癌症儿童及其家人的生活质量.
- 早期整合PPC经常受到各种障碍的阻碍.
研究的目的:
- 评估目前中国儿童癌症患者的PPC整合情况.
- 确定PPC实施的理想和实际时间之间的差距.
- 突出医生认为早期PPC整合的障碍.
主要方法:
- 验证的评估医生对息治疗的态度 (ADAPT) 调查被翻译成中文.
- 在中国25个省份,向照顾患有癌症的儿童的医生分发了调查.
- 对368个医生回复的描述性和定性分析.
主要成果:
- 大多数PPC咨询 (83.2%) 发生在生命末期,而不是在诊断时理想 (70.4% 理想与32.9% 实际).
- 关键障碍包括对息护理专家/服务的有限访问 (79.9%),缺乏三级医院职位 (75.5%),以及家庭服务不足 (73.4%).
结论:
- 在中国,PPC咨询的理想时间和实际时间之间存在很大的差距.
- 专家和家庭服务的有限访问是医生认为的主要障碍.
- 调查结果为加强中国PPC能力的干预提供了方向.
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