将总结的研究结果返还给参与者:对当前实践,偏好和挑战进行范围审查
Betina Idnay1, Yiwen Zhang1, Kathleen Sandra Therese1
1Biomedical Informatics, Columbia University in the City of New York, New York, New York, USA.
BMJ open
|November 30, 2025
概括
将总体研究结果返还给参与者是道德上支持和希望的,但很少实践. 需要更明确的政策,机构支持和以公平为重点的战略来弥合这一差距.
科学领域:
- 公共卫生研究 公共卫生研究
- 卫生公平研究 卫生公平研究
- 临床研究传播和传播
背景情况:
- 将总结的研究结果返回给参与者是公共卫生中的伦理考虑.
- 综合了当前实践,参与者偏好和挑战的证据.
- 探讨了对健康公平和政策制定的影响.
研究的目的:
- 综合当前关于向参与者返回综合研究结果的证据.
- 识别结果传播中的实践,偏好和挑战.
- 为公众健康,健康公平和政策制定提供信息.
主要方法:
- 根据PRISMA-ScR框架进行了范围审查.
- 在四个数据库 (PubMed,EMBASE,CINAHL,Cochrane) 进行了搜索,直到2025年2月.
- 主题综合分析了12篇符合条件的英语同行评审文章.
主要成果:
- 包括来自不同地区和健康主题的12项研究 (2002-2019).
- 参与者更喜欢邮寄信件和面对面的会议来获得结果.
- 关键主题包括尊重,个性化格式,文化定制,道德考虑和制度障碍.
结论:
- 返回总体研究结果是道德上支持和希望的,但很少实践.
- 政策指导,机构支持和以公平为重点的战略至关重要.
- 需要以参与者为中心,可扩展的方法来建立公众对科学的信任.
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