支持具有复杂沟通需求的自闭症成年人发声:检查自闭症声音框架的适应
Myriam L H Beauchamp1, Julie Scorah2, Mayada Elsabbagh2
1School of Rehabilitation Sciences - Speech-Language Pathology Programme, Faculty of Health Sciences, University of Ottawa, Ottawa, ON, Canada.
Frontiers in human neuroscience
|December 1, 2025
概括
这项试点研究适应了针对有复杂沟通需求的自闭症成年人的研究框架,使用视觉支持来改善面试参与. 结果表明适应部分成功,使自闭症患者的研究更具包容性.
科学领域:
- 神经发育障碍 神经发育障碍
- 关于残疾人的研究.
- 研究方法研究方法研究方法学
背景情况:
- 有沟通困难的自闭症成年人经常被排除在研究之外.
- 第一人称视角研究通常需要强大的言语,语言和认知能力.
- 自闭症声音框架旨在包括多样化的自闭症声音.
研究的目的:
- 调整自闭症声音框架,以便与CANDID-R采访一起使用.
- 评估在面试期间使用视觉支持对自闭症成年人具有复杂的沟通需求的可行性.
- 加强自闭症个体在研究中的纳入.
主要方法:
- 11名自闭症成年人参与了复杂的沟通需求.
- 坎贝尔韦尔对成年人发展障碍和智力障碍的需求评估-研究 (CANDID-R) 访谈采用视觉支持进行.
- 为验证和参与评估,进行了护理人员采访和行为观察.
主要成果:
- 适应自闭症声音框架部分支持参与者回答面试问题.
- 视觉支持在面试期间协助参与者的参与,如行为观察所示.
- 对框架和面试过程进行进一步的调整是必要的.
结论:
- 包容性研究实践对于理解自闭症患者生活经验至关重要.
- 通过视觉支持来适应研究方法,可以促进包括具有复杂沟通需求的自闭症成年人.
- 需要持续创新,以确保所有自闭症患者平等参与研究.
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