英国成年人之间的健康相关数据共享中的信任和感知可靠性:跨部门调查
Jonathan R Goodman1,2,3, Alessia Costa1, Richard Milne4,5
1Society & Ethics, Wellcome Sanger Institute, Wellcome Genome Campus, Hinxton, CB10 1RQ, United Kingdom, 44 01223 834244.
Journal of medical Internet research
|December 2, 2025
概括
公众对健康数据共享的信任是复杂的,具体取决于具体的环境. 了解这些细微差别对于有效的卫生政策和技术采用至关重要.
科学领域:
- 医疗信息学 医疗信息学
- 卫生社会学 卫生社会学
- 公共卫生政策 公共卫生政策
背景情况:
- 公共信任对于健康数据共享和解决健康不平等至关重要.
- 现有的研究可能过于简化了对医疗保健机构信任的多面性质.
- 在健康数据共享中,信任关系的表现需要进一步探索.
研究的目的:
- 确定对健康数据共享的信任的关键驱动因素.
- 检查信任及其预测因素的人口变化.
- 评估复合信任评分在预测医疗技术使用中的有用性.
主要方法:
- 对1192名英国成年人 (年龄≥18) 进行了横截面调查.
- 参与者评价了一般和实体特定的信任 (1-5级).
- 贝叶斯模型分析了人口预测因素和综合信任评分与医疗技术使用的关系.
主要成果:
- "可靠性"和"负责任的行为"是信任的主要驱动因素.
- 信任因实体 (家庭,NHS,科技公司) 不同,受熟悉程度和责任感的影响.
- 更高的一般信任预测了更高的复合信任得分,但这个得分与使用健康跟踪设备的反相关.
结论:
- 对健康数据共享的信任是特定于环境和关系的,而不是全球性的特征.
- 自我报告的全球信任可能无法预测医疗技术行为.
- 特定领域的信任测量对于制定卫生政策至关重要.
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